Part 2: Post-Assessment Survey
1.
Please enter the same 'id' that you used to complete the Pre-Assessment Survey. We STRONGLY recommend that you use your email address. Please note that NO email will be sent to you and your email address will not be shared with anyone else.*THIS IS A REQUIRED FIELD.
2.
How did you learn about clinical trials in this pilot study?
Information was sent to me in the mail
I viewed information on the Internet
I attended a workshop at The Wellness Center
Based on what you learned, please rate your answer to the following questions on a scale of 1-5 with 1 being the lowest score and 5 being the highest score.
3.
How would you rate the clarity of the information provided to you on clinical trials?
1
2
3
4
5
4.
How would you rate your current knowledge of clinical trials now?
1
2
3
4
5
5.
How likely are you to speak with your doctor about whether there is a clinical trial that is right for you or your loved one?
1
2
3
4
5
6.
How would you rate your willingness to participate in a clinical trial after reviewing the information provided?
1
2
3
4
5
7.
How likely are you to seek enrollment in a clincial trial for yourself or your loved one after reviewing the information provided?
1
2
3
4
5
8.
What is the most important thing that you believe people with cancer should know about clinical trials?
9.
How would you prefer to receive information about clinical trials? (Select all that apply. Window users must hold down control or shift while selecting multiple answers.)
from my doctor
from my nurse
from the Internet
in the mail
at a workshop or educational forum
from a friend
from a patient advocacy group
other (please explain in box below)
10.
What did you find the most useful about the way you received this information?
11.
After receiving this information, do you feel more or less anxious about participating in a clinical trial?
more anxious
less anxious
not sure
no change
12.
If you or your loved one still choose not to participate in a clinical trial after receiving this information, why not? (Select all that apply. Window users must hold down control or shift while selecting multiple answers.)
fear of medical risks
suspicion of medical research
fear of death
preference not to work with another physician
not sick enough
my doctor has not discussed this option with me
it seems too difficult or costly
other (please explain in box below)
This question does not apply to me (please explain in box below)
Please respond True or False to each of the following statments:
13.
Placebos (sugar pills) are almost never used in cancer treatment trials but may be used in cancer prevention trials.
True
False
14.
Clinical trials are usually the "last resort" for patients who have no other treatment choices.
True
False
15.
In randomized trials, participants are assigned to either a control group or the study group by an objective panel of scientists.
True
False
16.
Usually, the longest part of the drug development process is finding people to participate in the clinical trial.
True
False
17.
If new benefits, risks, or side effects are discovered during a trial, the researcher is not obligated to tell study participants.
True
False
18.
A clinical trial cannot be stopped before the study has been completed because of the high cost of conducting research.
True
False
19.
Most cancer patients know about clinical trials but prefer not to participate.
True
False
20.
One reason why people do not participate in clinical trials is a general fear or distrust of research.
True
False
21.
Doctors discuss clinical trials as a treatment option to racially and ethnically diverse populations because they are more likely to be medically underserved.
True
False
22.
In most clinical trials, patients receive free care.
True
False
23.
Extra tests may be required in a clinical trial that a patient's health plan may not cover.
True
False
24.
The physician who makes the cancer diagnosis always informs the patient of available clinical trials.
True
False
25.
General thoughts or comments:
26.
We'd like to call you approximately one month after you complete these surveys to ask a few follow-up questions. May we contact you?
Yes
No
27.
If you answered yes to the last question, please enter your phone number.
28.
We'd like to send you a small thank you gift for your participation. Please provide your name and address here (which will be kept confidential), so we can mail the gift to you.
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